Showing posts with label In the News. Show all posts
Showing posts with label In the News. Show all posts

Saturday, April 2, 2011

Wonder Mom

Sometimes words flow smoothly from my finger tips allowing the ideas that have been forming in my mind to somehow surface on the glowing screen before me. Other times I have writer's block. Period. That has been my past week. Starting to type and erasing. Posting pictures and removing.
I wish I could contribute this to the fact that my life has been less then memorable the past week, but that is not so. Work. Rain. Sick Baby. Those are the things that have encompassed my world for the past seven days.
Like most Wonder Woman Moms out there, when one of our children are sick, everything else becomes second in your mind. Doctor's appointments, x-rays, medications...all new front runners in the list of things that must be done in the course of a day.
I adore my Eslea. Having to watch her this past week as she is fighting off some kind of infection or cardiac issue has been a struggle for me. So many times I just want to yell "STOP" into the wind and hope it reaches the ears of whoever is causing her pain. Instead, I hold her. I rock her. I give her medicine. I pray. I spend hours in doctors' offices and after hour clinics. I do whatever it takes. Because sometimes we just have to put on our wonder mom panties and suck it up.  Our little wonder babies need us.


Eslea is doing fine by the way. She did gave us a little scare for a few days there. High temperatures that we couldn't control with medicine. Swelling in her hands and face that seem like an allergic reaction but no one is sure. X-rays showing spots again in her lungs that may be caused by blood from her heart or ...well, who knows.
So, today, we stand still not knowing exactly what is going on in that little body of hers. Despite it all, she somehow manages to share her magical smile with everyone that passes her way.


The events of this week have me thinking about the article in the paper and the words I wrote just for that feature:
“It’s amazing the difference six months can make. I have realized that there is only one reason that I was so scared and depressed when I first learned about Eslea having Down syndrome … ignorance. Like most people, I did not understand what exactly it means for someone to have Down syndrome. Yet, by educating myself and meeting other parents in the area, I have learned how wrong I was and how much I still need to grow. People with Down syndrome are individuals with their own wants, needs and desires. They can graduate from high school, go to college, get married, drive cars, hold down jobs, and so much more."
“Now as I reflect back, I’m amazed at the difference of feelings I have about my sweet Eslea. ... I am PROUD of her. I am proud that she is not ‘typical.’ I’m blessed that she changed my views of the world. Having children teaches us how to love. My Eslea taught me how narrow my view of the world has been. Now I know what it means to truly love everyone. Every. Single. Person.”

My first born, Emma, made me a mom. Eslea brought out the wonder woman I had hidden within. I know your kiddo has brought out the same in you. Your secret super power. Wonder Mom. Super Mommy. Lighting Mama. Whatever your name may be. We are united by the same thing, the will to do whatever it takes, including fighting with our pearly white teeth and manicured nails, for the well being of our little super family.


Now, excuse me if you will, my cape is a little dirty and I need to start a load of laundry.
Happy Friday.
-erin

Thursday, March 24, 2011

It's on the Website!

Sorry, but I just wanted to take a minute to let you know that one of the articles from this past weekend is now on the website of our local newspaper. Thank you to everyone that wrote in to them! You are amazing. Now...one more to go!

For all my not-so-local friends, here is the link to the article Eslea: Reserved of God.
Please leave a comment.
My goal is for the local paper to start doing a weekly special needs column. Special interest, support, information, you name it!
Thank you to everyone that helped make this happen.
There is all kinds of love pouring from me directly to you right now. I know you have to feel it.
-erin

Tuesday, March 22, 2011

Ain't too Proud to Beg (A Pass It On Post)

Beg. Plead. Beseech. Solicit.
Pick a word. Any word. I just hope you'll take the time to pass on my request.

Some of you may already be aware of this but....
Eslea and I were featured in the local newspaper this Sunday. One of the editors printed selections from Eslea's birth story along with a SECOND article about the Down Syndrome support group that some of us are starting. The article was beautiful and although most of you have already read Eslea's birth story, she did include additional material such as my views now six months later. 
Unfortunately, the newspaper did not link the articles to it's website. Such a shame because those articles took up two entire pages. In COLOR at that. Since it's not available to the general public electronically, one day this week I will post it even if I have to retype it all myself.  I want everyone to be able to read the encouraging words of my fellow support group moms (who are now family).


What you may not know is.... 
Eslea and I, along with other parents, were also on the local news Monday night to promote Down Syndrome Awareness and the new group (Down Syndrome Association of S. Ga) that we are starting.
You can view the footage here: WCTV World Down Syndrome Day Footage

Now...I am asking you all to do me a favor.
Well, technically it's two favors. So, here goes...
The only way children like my Eslea will ever truly be accepted for the value they can offer this world, is for the media to start spending more time on special needs issues.
I'm asking you to please go to both media sites and request that they do more stories on down syndrome and special needs!
PLEASE take time to compliment the story and let them know that you would love to see more!
(Remember, the story was NOT on the newspaper's website. Again, shame on them!)

(Edited 3/24/2011 to add that Eslea's story is now on the website. Here is the link Eslea:Reserved of God. Just one more article to go!)

For Valdosta Daily Times, you can send a letter to the editor by clicking here: VDT: Letter to the Editor
(You could also post something in the rant and rave, if you're feeling motivated: VDT: Rant and Rave
For WCTV, you can post a comment by following the link here: WCTV World Down Syndrome Day Footage

Oh and one more thing....PLEASE, PLEASE, PLEASE pass this on to your friends!
I also have the video posted on the Down Syndrome Association of South Georgia website.

Thank you for supporting not only Eslea but the millions of beautiful people just like her in this world!!
-erin